Submission to the College of Physicians and Surgeons of
Saskatchewan
Re: Physician-Assisted Dying Draft Guidance Document
20 October, 2015
Full Text
I. Introduction
I.1 The Protection of Conscience Project is a non-profit,
non-denominational initiative that advocates for freedom of conscience among
health care workers. It does not take a position on the acceptability of
morally contested procedures. For this reason, only a few points in
Physician-Assisted Dying Draft Guidance Document are addressed in
this submission.
II. Scope of this submission
II.1 The Project makes some cautionary observations concerning the
provision of information (Part III), specific
recommendations concerning informed decision-making (Part IV)
and one of the proposed standards (Part V), and offers a
policy to ensure protection of physician freedom of conscience that can be
applied to euthanasia and assisted suicide as well as other morally
contested procedures (Part VI).
II.2 While it is outside the scope of Project
interests, it seems prudent to point out that the draft document omits the
Supreme Court of Canada requirement that candidates for euthanasia and
physician assisted suicide must be adults.
III. Re: "unbiased and inaccurate
information"
Guidance draft - Foundational Principles (2) Access
III.1 The draft document states: "Individuals who seek
information about physician-assisted dying should have access to unbiased
and accurate information."
III.2 Taken at face value, this is an entirely
reasonable expectation. However, it must be understood that objecting
physicians or health care workers who are explaining their own position to
patients may make statements to the effect that they do not consider
euthanasia and assisted suicide to be forms of medical treatment or
palliative care. In the course of such conversations, they may also
ethically distinguish between withdrawal/refusal of treatment and killing
patients or helping them to kill themselves.
III.3 Euthanasia/assisted suicide activists may take
exception to statements or explanations of this kind, calling them biassed
and inaccurate. The College must not use this policy to try to force
objecting physicians to express and live by the ethical beliefs of
euthanasia/assisted suicide activists rather than their own.
IV. "certainty of death"
Guidance draft - 1.4 Informed Decision
IV.1 According to the draft, the patient must be
informed of "the certainty of death upon taking the lethal medication" and
"the potential complications associated with the medication."
IV.2 However, death is not always certain. Euthanasia
and assisted suicide drugs do not always cause death as expected.1 It is for
this reason that Quebec euthanasia kits are to include two courses of
medication.2
IV.3 Discussion with patients should include discussion
of options available in the event that a lethal injection or prescribed drug
does not kill the patient, and the patient should be asked to provide
direction on this point. The relationship of this issue to physician freedom
of conscience is addressed in Part V.
V. Responsible physician obligations
V.1 Pending the development of standards for the
performance of physician assisted suicide and euthanasia, the Draft
Guidance Document makes only a single statement:
The attending physician must be available to care for
the patient until the patient's death, if the patient so requests.
V.2 "Attending physician" in this context appears to
refer to the physician who has agreed to assist with the patient's suicide
or provide euthanasia rather than (for example) a family physician who has
declined to do so, but who continues to be responsible for other aspects of
patient care in accordance with Foundational Principle (8) in the document.
V.3 It would be helpful to make this explicit. To avoid
ambiguity, it would also be helpful to use a specific term when referring to
the physician who has agreed to assist with the patient's suicide or provide
euthanasia (such as, "responsible physician" or "PAD physician"). The term "responsible physician" is used in this part.
V.4 Assisted suicide vs. euthanasia
V.4.1 The 2014 statistics produced by a survey of
Canadian Medical Association members indicated that more physicians were
willing to participate in assisted suicide than euthanasia.3,
4, 5, 6
V.4.2 However, a physician who agrees to help a patient
commit suicide would seem to have accepted an obligation to do something
that will result in the patient's death, and to do it according to accepted
standards. This obligation seems implicit in the agreement.
V.4.3 In the case of a failed physician-assisted
suicide that incapacitates a patient, it is likely that the responsible
physician will be expected to fulfil his commitment to help bring about the
death of the patient by providing a lethal injection or finding someone
willing to do so. The expectation would be stronger if the patient had
sought assisted suicide to avoid the kind of incapacitation caused by the
failed suicide attempt.
V.4.4 Here the issue of physicians willing to assist in
suicide but unwilling to provide euthanasia becomes acute. Those willing to
assist with suicide but not euthanasia may be reluctant or unwilling to ask
another colleague to kill the patient. Moreover, the Carter ruling
limits the provision of euthanasia to competent patients. Thus, to ask
physicians to kill a patient who has been rendered incompetent by a
colleague's failed attempt would seem to expose them to prosecution for
first degree murder or, at least, assisted suicide.
V5. Urgent situations
V.5.1 Some authorities have stated that a physician's
obligation to provide treatment urgently needed to prevent imminent harm to
patients does not extend to providing assisted suicide or euthanasia.7 This
presumes that, since the procedures require extensive preliminary
consultation and preparation before they can be authorized, they can never
be urgently required.
V.5.2 That presumption is challenged by testimony taken
by the Quebec legislative committee studying what later became the
province's euthanasia law (An Act Respecting End of Life Care).
Representatives of the College of Pharmacists of Quebec agreed that the
provision of euthanasia would not seem to involve "the same urgency" as
other kinds of procedures, and that arrangements could normally be made to
accommodate conscientious objection by pharmacists because the decision
could be anticipated.8 However, they also stated that
situations may evolve more quickly than expected, and that (for example)
palliative sedation might be urgently requested as a result of respiratory
distress precipitated by sudden bleeding.9
V.5.3 The pharmacist representatives distinguished between making a
decision that euthanasia or assisted suicide should be provided - a decision
which might take days or weeks - and a decision that a drug should be
urgently provided to deal with an unanticipated and critical development in
a patient's condition.10
V.5.4 Under the terms of the Carter ruling and
the Draft Guideline Document, it is possible that a responsible
physician might agree to provide euthanasia or assisted suicide on a given
date and time, to accommodate (for example) the desire of geographically
distant family members to be present at the patient's death. Between the
time that decision is made and the appointed time, however, a sudden
deterioration of the patient's condition may cause him to ask for immediate
relief from pain or suffering by euthanasia or assisted suicide.
V.5.5 No problem will arise if the responsible
physician is immediately available to fulfil the request. However, there is
likely to be a problem if the responsible physician is absent or
unavailable, and other physicians willing to kill the patient or assist in
suicide cannot be conveniently found. This situation is more likely to arise
if the originally appointed time for euthanasia/assisted suicide is some
days later than the decision to provide the procedure.
V.6 Recommendations
V.6.1 In order to avoid conflicts of conscience occurring in particularly
difficult circumstances, and to avoid conflicts of conscience among health
care workers who may be involved in other aspects of the care or treatment
of a patient:
1) Physicians should not undertake to provide
assisted suicide unless th1) Physicians should not undertake to provide
assisted suicide unless they are also willing to provide euthanasia.
2) In all cases, the responsible physician should,
immediately prior to administering or providing the lethal medication,
obtain written direction from the patient as to what action should be taken
if the prescribed or administered drugs fail to cause death. (NB. In the
case of patients incapacitated by failed euthanasia/assisted suicide, it is
not known if this would be legally sufficient to invoke the exemption from
prosecution provided by Carter.)
3) The responsible physician should personally
administer the lethal drug or be personally present when it is ingested, and
remain with the patient until death ensues.
4) A responsible physician who has agreed to provide
euthanasia or assisted suicide must be continuously available to do so from
the time the agreement is made to the time that the procedure is performed,
unless the patient withdraws the request.
5) A responsible physician who has agreed to provide
euthanasia or assisted suicide must also arrange for a second responsible
physician to provide the procedure in the event that he is unable to be
continuously present or is unable to act.
6) The second responsible physician must be
continuously available to act in the place of the primary responsible
physician.
VI. Suggested policy on physician exercise of
freedom of conscience
VI.1 Appendix "A" provides a policy concerning the
exercise of freedom of conscience by physicians that, in the Project's
experience, would be acceptable to most objecting physicians. It can be
modified to apply to other health care workers. It is consistent with
-
CMA, CHA, CNA, CHAC- Joint Statement on
Preventing and Resolving Ethical Conflicts Involving Health Care Providers
and Persons Receiving Care (1999);
-
the Canadian Medical Association Code of
Ethics (2004);
-
the Canadian Medical Protective Association
publication, Consent: A guide for Canadian physicians (2006).
-
the Canadian Medical Association's
Principles-based Recommendations for a Canadian Approach to Assisted
Dying (2015)
VI.2 The policy provides seven alternative
responses for objecting physicians, reflecting the fact that different
ethical, moral or religious traditions may take different approaches to the
issue of complicity in morally contested acts. Further, within some
traditions, the facts of a particular case may influence the moral judgement
of a physician.
VI.3 CMA guidance noted in VI.1 does not
preclude the other alternatives in the suggested policy for reasons given by
the Association to the Supreme Court of Canada:
The CMA's purpose, in developing and setting policy,
is not to override individual judgment or to mandate a standard of care.11
The CMA's policies are not meant to mandate a standard
of care for members or to override an individual physician's conscience.12
VI.4 None of the responses obstruct patient access
to services. Some responses involve deliberate of facilitation of the
services. It is up to the physician to decide which response to choose in
each case.
Appendix "A"
Physician Exercise of Freedom of Conscience and Religion
AI. Introduction
AI.1 To minimize inconvenience to patients and avoid
conflict, physicians should develop a plan to meet the requirements of Parts
AII and AIII for services they are
unwilling to provide for reasons of conscience or religion.
AII. Providing information to
patients
AII.1 This Part highlights points of particular
interest within the context of the exercise of freedom of conscience. It is
not an exhaustive treatment of the subject of informed consent.
AII.2 In exercising freedom of conscience and religion,
physicians must provide patients with sufficient and timely information to
make them aware of relevant treatment options so that they can make informed
decisions about accepting or refusing medical treatment and care.
- CMA, CHA, CNA, CHAC- Joint Statement on
Preventing and Resolving Ethical Conflicts Involving Health Care Providers
and Persons Receiving Care (1999) I.413
- Canadian Medical Association Code of Ethics
(2004) para. 2114
- Canadian Medical Protective Association,
Consent: A guide for Canadian physicians (4th ed) (May, 2006):
Disclosure of information; Standard of disclosure.15
- Canadian Medical Association, Principles-based
Recommendations for a Canadian Approach to Assisted Dying (2015)
Section 1.2, 5.216
AII.3 Sufficient information is that which a reasonable
patient in the place of the patient would want to have, including diagnosis,
prognosis and a balanced explanation of the benefits, burdens and risks
associated with each option.
- CMA, CHA, CNA, CHAC- Joint Statement on
Preventing and Resolving Ethical Conflicts Involving Health Care Providers
and Persons Receiving Care (1999) I.713
- Canadian Medical Association Code of Ethics
(2004) para. 2114
- Canadian Medical Protective Association,
Consent: A guide for Canadian physicians (4th ed) (May, 2006): Standard
of disclosure; Some practical considerations - (1), (2). (4), (5)15
- Canadian Medical Association, Principles-based
Recommendations for a Canadian Approach to Assisted Dying (2015)
Section 1.2, 5.216
AII.4 Information is timely if it is provided as soon
as it will be of benefit to the patient. Timely information will enable
interventions based on informed decisions that are most likely to cure or
mitigate the patient's medical condition, prevent it from developing
further, or avoid interventions involving greater burdens or risks to the
patient.
AII.5 Relevant treatment options include all legal and
clinically appropriate procedures, services or treatments that may have a
therapeutic benefit for the patient, whether or not they are publicly
funded, including the option of no treatment or treatments other than those
recommended by the physician.
- Canadian Medical Association Code of Ethics
(2004) para. 2317
AII.6 Physicians whose medical opinion concerning
treatment options is not consistent with the general view of the medical
profession must disclose this to the patient.
- Canadian Medical Association Code of Ethics
(2004) para.4518
AII.7 The information provided must be responsive to
the needs of the patient, and communicated respectfully and in a way likely
to be understood by the patient. Physicians must answer a patient's
questions to the best of their ability.
- CMA, CHA, CNA, CHAC- Joint Statement on
Preventing and Resolving Ethical Conflicts Involving Health Care Providers
and Persons Receiving Care (1999) I.413
- Canadian Medical Association Code of Ethics
(2004) para. 21,14 2219
- Canadian Medical Protective Association,
Consent: A guide for Canadian physicians (4th ed) (May, 2006): Standard
of disclosure; Some practical considerations - (3)15
- Canadian Medical Association, Principles-based
Recommendations for a Canadian Approach to Assisted Dying (2015)
Foundational Principle (6), (10)20
AII.8 Physicians who are unable or unwilling to comply
with these requirements must promptly arrange for a patient to be seen by
another physician or health care worker who can do so.
AIII. Exercising freedom of
conscience or religion
AIII.1 In exercising freedom of conscience and
religion, physicians must adhere to the requirements of Part
AII (Providing information to patients).
AIII.2 In general, and when providing information to
facilitate informed decision making, physicians must give reasonable notice
to patients of religious, ethical or other conscientious convictions that
influence their recommendations or practice or prevent them from providing
certain procedures or services. Physicians must also give reasonable notice
to patients if their views change.
- CMA, CHA, CNA, CHAC- Joint Statement on
Preventing and Resolving Ethical Conflicts Involving Health Care Providers
and Persons Receiving Care (1999) I.1613
- Canadian Medical Association Code of Ethics
(2004) para. 12,21 2114
AIII.3 Notice is reasonable if it is given as soon as
it would be apparent to a reasonable and prudent person that a conflict is
likely to arise concerning treatments or services the physician declines to
provide, erring on the side of sooner rather than later. In many cases - but
not all - this may be prior to accepting someone as a patient, or when a
patient is accepted.
AIII.4 In complying with these requirements, physicians
should limit discussion related to their religious, ethical or moral
convictions to what is relevant to the patient's care and treatment,
reasonably necessary for providing an explanation, and responsive to the
patient's questions and concerns.
AIII.5 Physicians who decline to
recommend or provide services or procedures for reasons of conscience or
religion must advise affected patients that they may seek the services
elsewhere, and provide information about how to find other service
providers. Should the patient do so, physicians must, upon request, transfer
the care of the patient or patient records to the physician or health care
provider chosen by the patient.
- CMA, CHA, CNA, CHAC- Joint Statement on
Preventing and Resolving Ethical Conflicts Involving Health Care Providers
and Persons Receiving Care (1999) II.1013
- Canadian Medical Association Code of Ethics
(2004) para. 2114
- Canadian Medical Association, Principles-based
Recommendations for a Canadian Approach to Assisted Dying (2015)
Section 5.222
AIII.6 Alternatively, in response
to a patient request, physicians may respond in one of the following ways,
consistent with their moral, ethical or religious convictions:
a) by arranging for a transfer of care to another
physician able to provide the service; or
b) by providing a formal referral to someone able to
provide the service; or
c) by providing contact information for someone able
to provide the service; or
d) by providing contact information for an agency or
organization that will refer the patient to a service provider; or
e) by providing contact information for an agency or
organization that provides information the patient may use to contact a
service provider; or
f) by providing non-directive, non-selective
information that will facilitate patient contact with other physicians,
heath care workers or sources of information about the services being sought
by the patient.
- Canadian Medical Association, Principles-based
Recommendations for a Canadian Approach to Assisted Dying (2015)
Section 5.222
AIII.7 A physician's response under
AIII.5 or AIII.6 must be timely. Timely responses
will enable interventions based on informed decisions that are most likely
to cure or mitigate the patient's medical condition, prevent it from
developing further, or avoid interventions involving greater burdens or
risks to the patient.
AIII.8 In acting pursuant to AIII.5
or AIII.6, physicians must continue to provide other
treatment or care until a transfer of care is effected, unless the physician
and patient agree to other arrangements.
- CMA, CHA, CNA, CHAC- Joint Statement on
Preventing and Resolving Ethical Conflicts Involving Health Care Providers
and Persons Receiving Care (1999) I.16, II.1113
- Canadian Medical Association Code of Ethics
(2004) para. 19,23 2114
AIII.9 Physicians unwilling or unable to comply with
these requirements must promptly arrange for a patient to be seen by another
physician or health care worker who can do so.
AIII.10 Physicians who provide medical services in a
health care facility must give reasonable notice to a medical administrator
of the facility if religious, ethical or other conscientious convictions
prevent them from providing certain procedures or services, and those
procedures or services are or are likely to be provided in the facility. In
many cases - but not all - this may be when the physician begins to provide
medical services at the facility.
AIV. Reminder: treatments in emergencies
AIV.1 Physicians must provide medical treatment that is
within their competence when a patient is likely to die or suffer grave
injury if the treatment is not immediately provided, or immediately arrange
for the patient to be seen by someone competent to provide the necessary
treatment.
- Canadian Medical Association Code of Ethics (2004) para. 1824
AIV.2 Physicians who fail to provide or arrange for
medical treatment in such circumstances may be liable for negligence or
malpractice.
Notes
1. Groenewoud JH, van der Heide A.
Onwuteaka-Philipsen BD Willems DL van der Maas PJ, van der wal G., "Clinical
Problems with the Performance of Euthanasia and Physician-Assisted Suicide
in the Netherlands." N Engl J Med 2000; 342:551-556 February 24,
2000
2. Ubelacker S.
"Quebec MDs to get euthanasia guide to prepare for legalized assisted death:
Unclear whether other provinces and territories will adopt a similar
practice." The Canadian Press, 1 September, 2015 (Accessed
2015-09-03).
3. Moore E.
"Doctor is hoping feds will guide on assisted suicide legislation."
Edson Leader, 12 February, 2015. (Accessed 2015-07-16).
4. Rich, P. "Physician
perspective on end-of-life issues fully aired." Canadian Medical
Association, 19 August, 2014 (Accessed 2015-06-22).
5.
Ubelacker S.
"Medical professionals try to answer burning questions on doctor-assisted
death." Associated Press, 13 February, 2015 (Accessed
2015-07-04).
6. Kirkey S.
"How far should a doctor go? MDs say they ‘need clarity' on Supreme Court's
assisted suicide ruling." National Post, 23 February, 2015
(2015-07-04).
7. "A request for physician assisted death will not
be considered an emergency in the context of this policy, and is therefore
not a service or intervention that physicians will be required to provide,
contrary to their conscience or religion." College of Physicians and
Surgeons of Ontario,
Professional Obligations and Human Rights: Frequently Asked Questions.
(Accessed 2015-10-17)
8. Consultations & hearings on Quebec Bill 52,
College of Pharmacists of Quebec:
Dianne Lamarre, Manon Lambert.
Tuesday 17 September 2013 - Vol. 43 no. 34,
T#49,
T#58.
9. Consultations & hearings on Quebec Bill 52,
College of Pharmacists of Quebec:
Dianne Lamarre, Manon Lambert.
Tuesday 17 September 2013 - Vol. 43 no. 34,
T#33.
10. Consultations & hearings on Quebec Bill 52,
College of Pharmacists of Quebec:
Dianne Lamarre, Manon Lambert. Tuesday
17 September 2013 - Vol. 43 no. 34,
T#76,
T#87,
T#88.
11. In the Supreme Court of Canada (On Appeal
from the Court of Appeal of British Columbia)
Affidavit of Dr. Chris Simpson, Motion for Leave to Intervene by the
Canadian Medical Association (5 June, 2014), para. 17 (Accessed
2015-06-22).
12. In the SCC on appeal from the BCCA,
Factum of the Intervener, The Canadian Medical Association (27 August,
2014), para. 9.
13.
Joint Statement on Preventing and Resolving Ethical Conflicts Involving
Health Care Providers and Persons Receiving Care (1999) (Canadian
Medical Association, Canadian Healthcare Association, Canadian Nurses'
Association, Catholic Health Association of Canada).
14. Canadian Medical Association
Code of
Ethics (2004): "21. Provide your patients with the information they
need to make informed decisions about their medical care, and answer their
questions to the best of your ability." (Accessed 2015-09-22).
15. Canadian Medical Protective Association,
Consent: A guide for Canadian physicians (4th ed) (May, 2006)
(Accessed 2015-09-15).
16. Canadian Medical Association,
Principles-based Recommendations for a Canadian Approach to Assisted Dying
(2015) "Section 1.2: The attending physician must disclose to the patient
information regarding their health status, diagnosis, prognosis, the
certainty of death upon taking the lethal medication, and alternatives,
including comfort care, palliative and hospice care, and pain and symptom
control." "Section 5.2: . . . physicians are expected to provide the patient
with complete information on all options available to them, including
assisted dying, and advise the patient on how they can access any separate
central information, counseling, and referral service."
17. Canadian Medical Association
Code
of Ethics (2004): "23. Recommend only those diagnostic and
therapeutic services that you consider to be beneficial to your patient or
to others. . ." (Accessed 2015-09-22).
18. Canadian Medical Association
Code
of Ethics (2004): "45. Recognize a responsibility to give generally
held opinions of the profession when interpreting scientific knowledge to
the public; when presenting an opinion that is contrary to the generally
held opinion of the profession, so indicate." (Accessed 2015-09-22).
19. Canadian Medical Association
Code
of Ethics (2004): "22. Make every reasonable effort to communicate
with your patients in such a way that information exchanged is understood."
(Accessed 2015-09-22).
20. Canadian Medical Association,
Principles-based Recommendations for a Canadian Approach to Assisted Dying
(2015) "Foundational Principle (6) Dignity: All patients, their family
members or significant others should be treated with dignity and respect at
all times, including throughout the entire process of care at the end of
life." "Foundational Principle (10) Mutual respect: There should be mutual
respect between the patient making the request and the physician who must
decide whether or not to perform assisted dying. A request for assisted
dying is only possible in a meaningful physician-patient relationship where
both participants recognize the gravity of such a request."
21. Canadian Medical Association
Code
of Ethics (2004): "12. Inform your patient when your personal
values would influence the recommendation or practice of any medical
procedure that the patient needs or wants." (Accessed 2015-09-22).
22. Canadian Medical Association,
Principles-based Recommendations for a Canadian Approach to Assisted Dying
(2015) "Section 5.2: . . . physicians are expected to provide the patient
with complete information on all options available to them, including
assisted dying, and advise the patient on how they can access any separate
central information, counseling, and referral service."
23. Canadian Medical Association
Code
of Ethics (2004): "19. Having accepted professional responsibility
for a patient, continue to provide services until they are no longer
required or wanted; until another suitable physician has assumed
responsibility for the patient; or until the patient has been given
reasonable notice that you intend to terminate the relationship." (Accessed
2015-09-22).
24. Canadian Medical Association
Code
of Ethics (2004): "18. Provide whatever appropriate assistance you
can to any person with an urgent need for medical care. " (Accessed
2015-09-22)