Where should bioethics go next? I will make six
suggestions. I am sure they will not be uniformly
popular, but I'd like to think they might provoke
some interesting discussion.
The recent celebration of the
40th anniversary of The Hastings Center afforded
an occasion both for looking back and for looking
ahead. Much of the programming that surrounded this
event, quite rightly, mused about the early days of
the field. I was still in grammar school, however,
when The Hastings Center was founded. As someone now
in mid-career, I would like to take this opportunity
to muse about the field, providing a look back but
largely challenging us about the future.
I suggest that bioethics has evolved through
three phases: a religious phase in the 1950s and
'60s, a philosophical phase in the '70s and '80s,
and a political-empirical phase from the '90s to the
present. Much as been written and said about the
first two phases, but little about more recent
history.
By the late 1980s, just as I was starting serious
study in the field, philosophical bioethics had
created a standard canon and had begun to rest on
its achievements. Physicians, who found the language
of philosophers alien but had been taking courses in
bioethics, began re-engaging the field (or, in some
cases, reclaiming it as their own).
The general public, policymakers, and many of the
new young students entering the field of bioethics
by this time also began to complain that philosophy
did not supply enough concrete answers to their
pressing questions. They wanted solutions to social
policy problems such as the distribution of health
care resources, cost-containment, and
physician-assisted suicide.
The physicians who became involved began to do
the scholarship that physicians did best - empirical
research. Simultaneously, the demand for relevance
led to a shift in bioethical discourse to the level
of policy and politics.
The move to the empirical and to policy was not
calculated to be synergistic, but it proved to be
so. Policymakers were happy to have empirical data
upon which they could draw to justify their
decisions.
I think this is where bioethics remains today.
There are still scholars doing serious philosophical
and theological work in the field, but the
mainstream has shifted to empirical studies and
policy concerns.
Where should bioethics go next? I will make six
suggestions. I am sure they will not be uniformly
popular, but I'd like to think they might provoke
some interesting discussion.
1. I think we should avoid the temptation
to make bioethics a clinical profession.
Sadly, I think this is where at least one of our
national organizations - the American Society for
Bioethics and Humanities - is headed. ASBH already
has a task force in place designed to deliver a
program for making that organization a national
accrediting body much like a medical board.
I think this is seriously wrong-headed. I
completely understand the desire to set standards so
that not just anyone can call herself a bioethicist
and act incompetently, even harming patients in a
hospital. However, one could accomplish this goal by
establishing general standards while leaving it up
to individual institutions to determine how they
will assure that such standards are met.
Local institutions should have the freedom, given
good reasons, to establish local variations. This
would mean a program of credentialing at the
local level without establishing a national accreditation program.
Establishing a national accrediting body has too
many problems:
- It
centralizes too much power in that group,
- It
risks making the organization a group for
bioethics consultants rather than for scholars
from various disciplines who are interested in
bioethics, many (if not most) of whom are not
engaged in bioethics consults,
- It
risks narrowing the intellectual playing field
by suggesting that bioethics is a practice
rather than a field of scholarly inquiry;
- It
makes bioethics consultation too analogous to
medical practice and runs the danger of being
co-opted by medicine when it should be something
that is not exclusively medical,
- It
denigrates the vitally important role of
nonethicists in ethics consultation. Expertise
is important; however, the inclusion of
nonexperts helps to ensure the best answers and
the best care for patients - consultation
conceived of as an enterprise best served by
engaging the many as well as the wise.
2. We should forswear our recent turn to politics
and start engaging again in basic scholarship.
Politics is important, and I do not suggest that we
should retreat to our ivory towers, smoking pipes
and thinking great thoughts without any concern for
the political aspects of bioethics. But too much
recent discourse in the field has degenerated into
spin control and sound bites. It has turned in too
many instances into the making of clever statements
that have punch, but little serious weight.
Too much of what passes for bioethics today has
become discourse about what bill or candidate to
support; about the latest transgression of the
canons of political rectitude that should provoke
our moral outrage. This is not the kind of serious
scholarship our society needs.
Our best hope lies in pursuing the fundamental
questions. This will often take us back to basic
inquiries such as those of moral psychology; the
meaning of altruism; the meaning of the common good;
what it means for human beings to flourish; the
place of medicine in a well-ordered society; and
critical thinking about rights, casuistry,
utilitarianism, pragmatism, and other very basic
questions that are essential to serious thinking
about bioethical questions. In the end, this will
not only be more productive, it will be a lot more
fun.
3. Similarly, I'd like to see a revival of
interest in the philosophy of medicine, nursing, and
the healing arts in general.
Partly this is selfish,
since I edit Theoretical Medicine and Bioethics,
which publishes such work. Although there is still a
lively discussion in this field in Northern Europe,
in the United States, the conversation almost
stopped dead in its tracks 15 years ago.
There are some hopeful signs that this is
changing. There is a serious uptick in interest in
the philosophy of medicine among young philosophers
- there is now a North American list serve.
There are also changes in the questions being
asked. While they used to be about concepts of
disease and health, now there is increasing interest
in the nature of medical knowledge and evidence, the
concept of disability, the logic of diagnostic
reasoning, and an abiding interest in
phenomenological understandings of the
physician-patient relationship. Once again, it seems
implausible to me that we can address the serious
ethical questions that confront us in medicine
without a more fundamental understanding of
medicine.
4. We should continue to pursue the goal of truly
interdisciplinary scholarship.
The academy, in
general, talks a great talk about being
interdisciplinary, but delivers very little.
Bioethics remains perhaps the last great hope for
interdisciplinarity truly to flourish. Bioethics has
done a decent job, but we can go much deeper. The
work will be hard, but rewarding.
The wrong way to go about this, however, is to
make bioethics into a homogenous mush. I am,
frankly, quite troubled by the proliferation of
degree-granting programs in "bioethics." A
smattering of sociology, philosophy, literature,
law, and political science does not constitute a
discipline that can interact with other disciplines
in a productive dialogue.
Bioethics is not a discipline. It is a
fascinating field of inquiry that can productively
attract scholars from many disciplines in a
dialogue. Each can learn from the other, and all can
contribute to a richer understanding of the
questions that confront us.
There is plenty of work to do in finding out how
better to facilitate interdisciplinary scholarship.
Exactly what can a sociologist do for a philosopher
or a historian for a lawyer? Can it develop beyond a
series of pictures at an exhibition to form some
sort of coherent unity? Bioethics is the field in
the best position to explore these questions.
5. I think it is time we started working on new
theories of bioethics.
Surely we did not exhaust all
the possibilities with five books in the 1970s, now
appearing in new edition after new edition.
All the new books in bioethics are about topics -
cloning, or advance directives, or research in the
developing world. Where are the new, comprehensive
views? Who will write these?
6. Finally, let me suggest that medical schools
would do well to embrace programs designed to train
clinicians in philosophy and theology, just as they
now train clinicians in molecular biology and
neuroscience.
For the field of bioethics to be
respected in academic medicine, it needs to embrace
its basic sciences. It is all well and good to do
empirical studies in health services research and
the psychology of medical decision-making, but these
methods are descriptive, not prescriptive.
We might be able to produce a core of such dually
trained experts - one or two per medical school -
and a cadre of interested philosophers, health
services researchers, clinician-educators,
psychologists, lawyers, and chaplains working with
them as an interdisciplinary team conducting
research, teaching, and doing ethics consultation. A
philosopher who knows the practice of medicine
experientially, or a physician who is trained in the
"basic sciences" of philosophy or theology, will be
better prepared to do bioethics than a philosopher
or theologian lacking in experiential knowledge or a
well-intentioned clinician who does not know any
theory.
At any rate, these are some rapid-fire thoughts
about the future from one who loves the field and
wants to see it flourish.